Champions Action Network is determined to unite all who are affected by a rare disease, and provide a platform to make change. Our primary mission is to change policy that will benefit those in the rare disease community, make compliance more accessible, overcome social barriers faced with a rare disease, and overall reach a higher quality of life to those affected by a rare disease.
We provide direct services, we connect people and communities with the services they need, and we call for state, national, and world leaders to help fight for rare disease.
Champions Action Network fights for the 30 million Americans (350 million affected worldwide) affected by a rare disease, and their loved ones. We offer educational programs and assist with funding to patients, their families, and their healthcare teams. We provide services, connect people and communities to services they need, and we call for state, national, and worldwide leasers to help fight for rare disease.
WHERE WE’RE HEADED
• Direct Services- We offer support to patients with a rare disease, their caregivers, and their loved ones
• Community Programs- We develop community programs that address day-to-day barriers of patients with a rare disease and their loved ones
• System Change- We partner with institutions and policymakers to change the future for the those in rare disease communities.